May 25, 2009

Bryce struggled a little today with being in a new environment (Respiratory ICU) and asked if he could move back to his old room where he knows the people (Shock Trauma ICU). One of our concerns is his confusion. At first it was kind of funny to hear him say some "off the wall” things, but it became more concerning as it has become more pronounced throughout the day. This has caused him to be easily upset with us as we try to alleviate his concerns (that are not applicable). His confusion is probably a result of the combination of his medications, “hospitalitis” and his high bilirubin. His pain is still high and he was put on a pain pump today, we just hope he remembers to push the button.

It was also very hard for us to see him cry today as he was frustrated with his confusion and the anxiety it is producing in him. He also moans and groans a lot in his sleep because of the pain he is in - this obviously is also difficult for us.

One of the things he is continually focused on was getting something to eat or drink. Sometimes he appeared to be seeing a mirage - he sees something and thinks it is food or drink. I think his four weeks of not eating anything is affecting him. Unfortunately his bowels still are not functioning well enough to eat or drink - he is still putting out a significant amount through his NG tube.

We were pleased to see his Bilirubin down to 18.9 from 22. This is positive even though it has much further to go. He is off oxygen and his vital signs are within normal limits.

He had to have dialysis again last night because his potassium went up to high. His white blood count has not dropped yet from the second round of chemo they gave him; however, they have also been giving him medications to help build his white blood count.

We are also pleased in some increase in his strength. He walked in the hall with his walker again which was great to see.

We are remaining positive and are so pleased with his progress even though we want him to get better "now", but it will be all in the Lord’s due time. Sometimes it is so hard to be patient. This must be one of the many lessons we are to learn from this trial? Hum…why are we such slow learners…