May 20, 2009

Today was another pretty awesome day. Bryce was taken off the ventilator this morning! He has a face mask on now and can even talk a little, very softly. We call him awesome man.

He still is having a lot of abdominal pain and his gastrointestinal system is still not working very well. The nasal gastrointestinal tube continues to pull a lot of fluids (bile, etc.) out of his body.

He was able to sit in a chair twice today and walked a little in his room. He gets worn out easily with having to exert so much effort to breathe on his own now, but all in all he is doing wonderful considering where he has been.

We continue to pray that his bilirubin will drop as they won't do the second round of chemo until it is at least down to 5 to 6 - today it increased to 17.6. This seems particularly important to us as the oncologist told us that this is a race to see if the chemotherapy or the cancer will win.

Bryce continues to be on dialysis for 12 hours each night. So far his kidney is not working, but we are hopeful that he will be able to retain it.

We are so grateful for all of your faith, prayers, and support.You will never know how much this means to us - we can feel all the love you are sending our way.

THANK YOU!

We know that some of you and your family members who are praying for Bryce have not ever met him and most of you have not met his fiancé, Jerica Robinson, his little angel and ours too!